Tests done!

I took the kids for the newest round of tests. This time it was blood. We took them to a place that specializes in various treatments of autism. ( I love this place!) It is the only place where I feel like we fit in! The workers all have kids on the spectrum and we meet tons of other families there for Hbot or other treatments. Minnie was in the playroom and sitting in her usual “W” stance where she sits on her knees and fans her legs behind her in the shape of a w. I said “Fix your feet” and she immediately did. A mom in the room said, “Wow, she learned that early!” No one else in the typical world would understand what fix your feet meant, but ASD moms know from therapy. (It is for kids with low muscle tone who have weak trunk muscles and get tired sitting they often distribute there weight by doing the W sit but they need to build up the trunk muscles so we don’t allow it.) Well at the center the kids were playing in the playroom and a little boy who is 3 months younger than Mickey was playing in there. His mom said his brother was in the Hyperbaric Oxygen Tank (a treatment to stimulate brain function in kids with autism.) We could tell the 3 year old in the playroom was neurotypical because he was talking up a storm. It really hit us hard that Mickey still isn’t where we want him to be in his recovery.  We also saw some older kids who were bright, beautiful and friendly but very severly autistic. It just really hit us that the clock is ticking on Mickey’s recovery. My husband who is rarely involved in the kids treatments, began asking me about starting Valtrex with Mickey. (an antiviral that we hope will clear up the internal measles from the MMR vaccine) I could tell he was upset by seeing the NT kid so much more verbal than Mickey.

The kids filled up 4 vials of blood each and despite the numbing cream. screamed non-stop. It was more that they didn’t want to be held down rather than pain. At least it is over until June when we finish the tests.