Update

Mickey and Minnie are doing really well. Minnie is talking up a storm and we are comfortable dropping her Early Intervention sessions to once a month. She will still recieve group, Occupational, Speech and Physical therapies. Her EI therapist came over to work with her and Minnie was using 2 and 3 word phrases! The therapist said, “Minnie, you are so smart!” Minnie replied, “I know” without skipping a beat. Just a month ago Minnie didn’t have any real solid words. It is just amazing the growth she has had. I really think diet and supplements have been key. Mickey is doing awesome too! He had his first OT session since a 2 week spring break and it was the best session we have ever had. Normally he whines and wants to go home or eat his snack. You would think OT was hard when really it is a giant playroom and he gets to choose what activities he does. But for a sensory kid it is a bit stressful. However, he was cooperative and even wanted to try new swings! He climbed, rolled, swung, jumped in the ball pit, did the trampoline (he is almost able to jump, but not quite yet), threw bean bags in a bucket and ate his snack. When it was time to go there was no whining or crying either. I checked in with his teacher who said he is still her model student, incredibly gifted, no compliance problems and he has even been trying to play with kids. He went up to another little boy and shouted, “GET ME” and they proceeded to play chase around the classroom. We also had a meeting with the school regarding feeling a bit disconnected with what he is doing in school and they have agreed to send out consent forms to all the parents so that they can film a day at school so we can all see how are kids are doing in class. I also volunteered to type up song lyrics and nursery rhymes they do in school so us parents can play at home with the kids and talk about their day. The school was very helpful in brainstorming ways we can feel more included in his life at school. We brought up all our concerns and evrything was addressed and handled perfectly. I feel so much better knowing he is in a good school program that really listens to us. They don’t ever make me feel bad for being “that” mom who is always spying on her kid and calling the teacher everyday. In fact, his teacher told me something that made me feel better. She said Mickey is doing so well because of all I do for him at home. She said the children who excel in school do so because they have parents who are working with them at home. She also is a big believer in diet and has been really supportive in making sure Mickey only eats what I send him.

Mickey has been saying alot of new things lately. Here are some examples:

I want a drink of water. (I said, “you want water?”) Yes, Mommy. I want to drink water.

Look up in the sky, it’s raining.

What’s that in the sky mommy? Its a white stick. (He saw the line of smoke from a plane)

I need more ammo (playing PS3 with Daddy)

Here Sissy wanna try? (Sharing the game controller with Minnie)

I am drawing a blank but their has been alot of cute things lately. We have reintroduced cod liver oil after I let it slip while we started Valtrex. I wanted him to drink the juice with Valtrex and not reject it if it had cod liver oil in it. I am not sure if it is the Valtrex or CLO helping with speech. We have not seen the healing rash from the Valtrex yet but we are only on day 10 and most people don’t see the rash until 4 weeks into it. I have decided not to wait any longer to try other treatments. I am taking the kids out of state to see a renowned homeopathist who is well known for treating ASD kids. We are really eager to start homeopathy treatments as alot of kids have fully recovered no longer needing special diets or supplements. We are still awaiting his most recent test results too. The test results will better tell us what direction to go in next. Overall the kids are doing well. They are happy and excelling in school and therapies. I am still struggling with the SCD but ordered some new cookbooks that have great recipes! I am just realizing cooking from scratch does not come easily to me! My kitchen is usually a disaster no matter how many times a day I clean it, but at least I am getting better! I am tired and overwhelmed but when the kids are having a good phase I am better able to sleep. When the kids are having trouble I just can not sleep. I cut out all caffeine (Goodbye sweet Coffee and tea!) because I was having severe anxiety attacks and insomnia.  I am also taking 5HTP for depression and Melatonin for sleep. I am back to taking all my vitamins and CLO and I am feeling better and sleeping better.  I have been reading more and trying to make time for me to just breathe. It isn’t easy because my mind is on autism 24 hours a day. I just can not wait till the kids are recovered and my worries and fears are gone. Soon. Very soon!